Dear Emmy,

 

 

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Written on August 6th, 2013.

Hey Pretty Girl. We’ve had a long week.  On Friday of last week we got a call from Children’s Hospital of Philadelphia Genetics and they said we could come for a last minute visit to see if the doctors there could figure out why it’s been a bit hard for you to get moving…

To make a long story short, we learned something about you that day that has been here all along-we just didn’t know your beautiful secret.  Emmy, you were born with Williams Syndrome.  Williams Syndrome happened to you when you were still being formed in my belly and is something that most people don’t even know about. The way I see it is, God set you apart so that you could show the world His Glory, His Grace, and His Goodness through your journey.  Our journey. Daddy, your siblings, and I will all walk it together with you so you’re never alone.  You may struggle at times but we will have many blessings to count, all because of you.  Emerson Kate, I want you to know how very much Mommy and Daddy love you and have always loved you. In fact, I think we may love you more now. I’m thankful for you. I’m thankful for Williams Syndrome. I’m thankful that we have the great privilege of traveling this journey together with you.  

You are so cherished, so loved, so delighted in. 

We love you Emmy.

Love,

Mama

 

“Williams Syndrome is a rare genetic disorder that is characterized by medical and cognitive problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities, and an affinity for music.”

http://www.williams-syndrome.org/ws

 

One thought on “Dear Emmy,

  1. Dearest Emmy,
    You are so loved by all of your bigger family of grandparents, aunts, uncles, and cousins. Your smile warms our hearts!

    Love , Mimi

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